Data access

With the pending update of the SCANDAT database, which has been financed by the Swedish Research Council, we are now offering access to data from the database to Swedish and Danish researchers. Data can be accessed after completion of review by ethics committee and after review by the SCANDAT steering committee. The following conditions are imposed to guarantee the protection of data:

  • At least one member of the steering committee should be involved in the proposed project (if not, before submission of any papers, the steering committee must receive a copy of the manuscript and agree on the dissemination of the finding).
  • The SCANDAT database must be acknowledged in any publications.
  • Only anonymized data will be delivered. If additional record linkages are required, they must be administered by the Department of Epidemiology and Biostatistics, Karolinska Institutet, or at the Department of Epidemiology Research, Statens Serum Institut, and reviewed for confidentiality before delivery.
  • Despite anonymization, there is often a possibility for backward re-identification if the number of variables is sufficient. When the computer equipment (including detachable memory devices) accommodating any delivered datasets is not under supervision, the equipment must be physically and securely locked to prevent unauthorized use, damage, and theft. Adequate protection against unauthorized access via the Internet or internal networks must also be in place. In any other case, the SCANDAT data must be encrypted.
  • A system for authorization control should steer the availability of SCANDAT data if the computer is used by more than one person. The authorization should be restricted to the persons who need the information in their work. The log in and password should be personal and not transferred to other persons. There should be routines for granting authorization.
  • When computer equipment containing SCANDAT data will not be used anymore, all must either be irretrievably erased. A copy of the dataset may be sent either to the Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, or to the Department of Epidemiology Research, Statens Serum Institut for storage.
  • The delivered data may only be used for analyses outlined in this application.
  • All persons working with the data should be informed about their responsibilities, deriving from the points above